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Subject: I need help from the general public
Replies: 144 Views: 10016
4evababy 28.09.14 - 11:42am
My son has a rare genetic brain disease called vanishing white matter disease, it cripples and kills these children,it's not commonly know of and there is no treatment or cure I need everyone to please help raise awareness, I have created a group called VWMawareness in it are links you'll find useful, sorry to disturb your fun but I don't want to lose my son we need a cure, time is running out, thank you for your time * +
sardonikkei 28.09.14 - 11:44am
Sounds super doctor who'y. * +
mok214 28.09.14 - 11:46am
It might help if you also use the proper name of the disease, Leukoencephalopathy. * +
sardonikkei 28.09.14 - 11:47am
Wow i just read the symptoms (sad) im so sorry for ur child. * +
4evababy 28.09.14 - 11:50am
Thank you to those with genuine concern I'm just looking for people to help raise awareness so please tell all the people you can that we need a cure * +
4evababy 28.09.14 - 11:51am
Mok214 it is one of 40 different types of leukodystrophy actually * +
4evababy 28.09.14 - 12:15pm
What is leukoencephalopathy with vanishing white matter? Leukoencephalopathy with vanishing white matter is a progressive disorder that mainly affects the brain and spinal cord (central nervous system). This disorder causes deterioration of the central nervous system's white matter, which consists of nerve fibers covered by myelin. Myelin is the fatty substance that insulates and protects nerves. In most cases, people with leukoencephalopathy with vanishing white matter show no signs or symptom * +
redvixen 28.09.14 - 12:22pm
I'm sorry. This Is so sad. Stay strong * +
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